Our Nominated Charities
Epidermolysis(EB) is a very distressing and painful condition which causes the skin internally and externally to tear and blister at the slightest touch. Children who survive childhood face the real and very frightening reality that they could develop skin cancer due to the constant break down of their skin.
DEBRA Ireland was set up by parents in 1988 at a time when there was no formal diagnosis available in this country and when there were no proper medical services in place. They came together and formed DEBRA Ireland in order to set up proper patient and medical services while also investing in research to find effective treatments and ultimately a cure.